By Rodney Mashego
Lucy Manyike from Baromeng village near Ga-relane village, Bushbuckridge is in need of help. Her 5-year-old son who suffers from chronic rare disease called hydrocephalus.
Hydrocephalus is an abnormal buildup of cerebrospinal (CSF) fluidin the ventricles of the brain. The fluid is often under increased pressure and can compress and damage the brain. Although the ventricles enlarge, the pressure of the CSF remains within normal range.Manyike says her son’s condition keeps worsening, even after the tube was inserted in his head.
“My son’s condition keeps getting worse. The doctors told me that the tube is working just fine. They also said that my son’s brain is too small, hence, the water inside cannot be drained effectively. They also told me that they do not have any other way of helping my son because his disease is very uncommon,” the concerned mother said.
The tube was inserted in the child’s head in September 2013 when the child was just about 7 months old at Rob Ferreira Hospital in Nelspruit. Manyike says she asked to be referred from Rob Ferreira to another hospital, and the doctors refused.
“My son cannot sit, so he’s always sleeping, and at times he vomits non-stop, so he needs urgent attention. I asked for a referral letter to other medical institutions, the doctors then told me that there was no need for that, because the same method they used to help my child would be used anywhere else.” She added.
Manyike also told the publication that the doctors at Mapulaneng Hospital told her that the only way they could assist was by transferring her to Rob Ferreira, and that any other referral letter is beyond their powers.
“I have been trying to get help for my boy, and I hope a good Samaritan will come to my rescue one day. As a parent i want what is best for my son. The hospitals have tried with all they could, I don’t know where else to go. He doesn’t even have a wheelchair.” She bemoaned.
Both parents are unemployed and are appealing to everyone for assistance. The father also added that they are trying all they can to get assistance, and that any form of help would be necessary.
The Department of Health Spokesperson Dumisani Malamule “The Department notes and appreciate this information. We are working on this case and we will do our best efforts to assist the child. If doctors are failing to help the child, we will ensure that the child is referred to the relevant hospital for help. Doctors are not allowed to tell patients that there is nothing they can do,” He said.